Friday, May 23, 2008

Situation unchanged, which is good!


Hi everyone,


We had another check up yesterday, and everything basically stayed the same. They did not measure growth this time, as they only do so every other week, but the heart functions were good. The amount of fluid in the belly/body cavity stayed about the same as well.


The pictures from this echo aren't as clear as we had an older machine this time, but the second is his foot. I will post them tonight, but already tell you that you can see that the foot got a little bit pushed out of alignment when he didn't have much amniotic fluid to swim around in. Since that is now a lot better it shouldn't get any worse (and hasn't gotten worse since the operation), and as such is no real problem.


After the scan/echo we had a short talk with one of the doctors about the plans for the EXIT procedure, which is a bit heavier then we thought. It will involve a very big team, and Louise will have to be sedated completely.
This procedure has been developed about 10 years ago, and is now getting more wide spread, seeing the first EXIT in ireland in 2007, and april 2008 for the university of Utah. In a review article made in 2004 51 out of 52 babies were born alive, but since then the technique has been further refined so we are looking forward to this procedure with confidence.
See: http://en.wikipedia.org/wiki/EXIT_procedure
The long term prospects of babies born through this procedure is completely dependant on what they actually have, allthough I am glad to say that our little one does not have any signs of something called 'congenital diaphragmatic hernia' which is mentioned in one of the articles in the wiki link above.


We have an appointment with the professor in Leiden on Monday to go over the details, and ask further questions. After that another scan on thursday offcourse. We'll keep you updated,



Thijs

1 comment:

Anonymous said...

Hoi Thijs en Louise,

Spannend allemaal, fijn dat het hart goed gaat.
We leven mee...........