Say a little prayer ...

Not to worry Noah is doing great.
We've enjoyed a really lovely family weekend with him. It's great having our pushchair now as it allows us to be more mobile. On Saturday we took Noah for a walk around the neighbourhood. We visited the post office, the butcher, had a stroll through some shops, everyone admired Noah - of course! :) We even sat and had a coffee and lunch in a cafe while Noah had some milk. It was great sitting outside with him eating lunch, it felt so normal at last.

On Sunday we all went for our first outing with the bakfiets. Noah loved it, he sat like a king on his throne surveying his domain. He was so relaxed, taking all the sights and sounds in. We cycled to Scheiveningen to visit Patricia and Theo. The cycling was great but we weren't so good with the getting organised, so apologies again Patricia and Theo for our late arrival. Again, a lovely afternoon spent relaxing with friends. I like this being a normal family :)



On Monday Lilo went for her walk with Marijke for the first time in a while. As usual she burst through the door with tail wagging. Marijke followed just as enthusiastically but with a little less energy! ;) She hadn't seen Noah for a while so it was great to hear from someone else that they could see how well he was doing.


We were a little disappointed on Monday evening to be called and told that we've been denied an increase in Noah's budget. The Zorgkantoor will not budge. No reason, just no. So we've had to cancel all nursing care from the end of August, which will leave us a deficit at the end of the year but we'll sort that out somehow. The only option open to us at this moment is to put Noah in care while Thijs and I go back to full time work and that we will never do. No one can understand how this can happen, as our case should be clear cut. We have plenty of medical data backing up our claim, but it seems Den Haag is a law unto itself. The sad part is that should we live in another part of the country, we wouldn't have experienced any of this. People are still appealing on our behalf. We're writing letter trying to get someone to take an interest in our case, but for now we are against the wall. So that's why I ask you, please pray for us because this is becoming much too big for us now and we really need all the help we can get.

Thanks all

xx Louise, Thijs & Noah