Hospital Update

Hi everyone,

We are at the hospital right now, nothing wrong with Noah, just for a check up. The doctor has just had a look at Noah's throat, to see if everything has healed well from last years operation and to check the stability and size of his airway. We are waiting to hear from him, and for Noah to be okayed to go home again as well.

Well the doctor has just been to see us, so the results are in!

Mixed news, as usual. His airway has healed well which is good news.

The not good news is that one of the cartilage rings keeping his airway open has squeezed in on itself.  It was a ring  which was directly below the blockage so it may be part of the CHAOS effect i.e. that it's the natural inclination of the ring to be closed - which is a theory of course.  

This means that Noah's airway is normal above and below where the surgery was performed but exactly below the surgery area the airway is now shaped like on sort of opened figure of 8. (or a minoan figure of 8 shield for the classicist among us) The airway is not big enough to breathe through properly, so he is still dependant on his canule.

We expected to hear that there was a bit of a problem with his airway, allthough this particular news was a surprise. The good side of it is, that they may be able to do something about it. 
What we're all nervous about is that it involves doing the same operate on the cartilage ring  - so a reconstruction.  The whole period with the stent was a very intense period and the three weekly operations were a big drain on Noah. But getting rid of his canule would be great, and sooner rather then later. We'll discuss everyhting with the doctors, and have a good think about everything - weighing the pros and cons.

Mixed news but at least somewhat positive. 

pictures soon again!

Louise & Thijs