Friday the results of the 'surgery' came back.
The doctors examined Noah's throat for a closer look at the blockage and his lungs to check how they have developed. They came back with some good news and some less good news (while not exactly bad not very entertaining either). Pick your order, I have listen the bad news first.
Bad news:
Noah has some problems with the airways in his lungs (trachea). Due to the amount of fluid and pressure in his lungs before birth, the trachea have been stretched and are a bit soft and weak. This means that that they are in danger of collapsing, all though the doctors think the chance of that happening is very slim. To prevent this from happening Noah will have to be on a ventilator, which will give a tiny bit of constant pressure to keep his lungs 'inflated'. For as long as he needs it, so until the trachea are strong enough. This could take 6 months, during which he will have to stay in the hospital. So a long long time until we can take our boy home.
Good news:
The doctors found that Noah has got vocal cords. They are clearly visible, but they are fused to the blockage in his throat. However they think they can leave them intact while removing the blockage, so that would be great! He may not have a very fine voice because some scarring will result on the vocal cords. Anyway, Bob Dylan made it big without being able to sing.
The actual operation will have to wait at least until Noah is of the ventilator, but most likely until after he is a year old. This because he will be a bit bigger by then, and thus making it a bit easier to perform such a delicate operation.
Other stuff:
We visited Noah together yesterday, the first time Louise was able to visit since he was moved to Rotterdam. It was very nice, because we were allowed to take clothes, and dress him so he finally looks like a real baby. After that Noah got to sit on Louise's lap, so they both look happy as can be :-). I'll try to post the pictures tonight.
Not completely Noah related stuff: Lilo has returned to us from an extended stay at the doggy spa and fitness center. She is looking fitter then ever, but we spoiled her rotten last weekend, off course. Louise's dad will arrive today to help out a bit so we can spend more time visiting Noah, or maybe sleeping ;-). Probably a bit of both.
Thijs
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4 comments:
We want PICTURES!!!!!!!!!!
Heee there
what a struggle but you'll get there and Noa will come home I promiss.
Thijs,
for the shopping list:
kwark zonder smaakje
Louis,
when you feel problem rising again with you brest put the kwark on them, not on your nipple, leave for 15 - 20 min. rinse off.It will kill the infection, it has saved me big time! It is rather strange to sit in your bed like that but it helps. Also during the kolving rub towards the nipple over the part where it hurts.
best of all and good luck
Saskia (Shell)
Hallo Thijs en Louise, ik volg jullie Noahstory vol spanning. Wat een knokkertje is dat mannetje! Het minder goede nieuws wordt zeker goed nieuws.
Geniet van hem.
Marijke, Doetinchem
Great tip Saskia - thanks - and I hope never ever ever to have to use it, once was enough! :)
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